Browsing Forschungszentren by Author "Howard, Heidi Carmen"

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Ethical issues in consumer genome sequencing: Use of consumers' samples and data

Niemiec, Emilia; Howard, Heidi Carmen (Amsterdam : Elsevier, 2016)

High throughput approaches such as whole genome sequencing (WGS) and whole exome sequencing (WES) create an unprecedented amount of data providing powerful resources for clinical care and research. Recently, WGS and WES ...
Readability of informed consent forms for whole-exome and whole-genome sequencing

Niemiec, Emilia; Vears, Danya F.; Borry, Pascal; Howard, Heidi Carmen (Heidelberg : Springer Verlag, 2017)

Whole-exome and whole-genome sequencing (WES, WGS) can generate an unprecedented amount of complex information, making the informed consent (IC) process challenging. The aim of our study was to assess the readability of ...

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