Babac, Ana; Litzkendorf, Svenja; Schmidt, Katharina; Damm, Kathrin; Frank, Martin; Schulenburg, Johann-Matthias Graf von der; Pauer, Frederic
(College Park : American Physical Society, 2017)
Background: Despite diverging definitions on rare conditions, people suffering from rare diseases share similar difficulties. A lack of experience by health professionals, a long wait from first symptoms to diagnosis, ...