Babac, Ana; Frank, Martin; Pauer, Frederic; Litzkendorf, Svenja; Rosenfeldt, Daniel; Lührs, Verena; Biehl, Lisa; Hartz, Tobias; Storf, Holger; Schauer, Franziska; Wagner, Thomas O.F.; Schulenburg, Johann-Matthias Graf von der
(London : BioMed Central Ltd., 2018)
Background: Rare diseases are, by definition, very serious and chronic diseases with a high negative impact on quality of life. Approximately 350 million people worldwide live with rare diseases. The resulting high disease ...