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Adopting Quality Criteria for Websites Providing Medical Information About Rare Diseases

Pauer, Frederic; Gobel, Jens; Storf, Holger; Litzkendorf, Svenja; Babac, Ana; Frank, Martin; Luhrs, Verena; Schauer, Franziska; Schmidtke, Jorg; Biehl, Lisa; Wagner, Thomas O.F.; Uckert, Frank; Schulenburg, Johann-Matthias Graf von der; Hartz, Tobias (Toronto : JMIR Publications, 2016)

BACKGROUND: The European Union considers diseases to be rare when they affect less than 5 in 10,000 people. It is estimated that there are between 5000 and 8000 different rare diseases. Consistent with this diversity, the ...
Gesundheitsökonomische Aspekte der Individualisierung der Medizin

Frank, Martin Heinrich Johann (Hannover : Gottfried Wilhelm Leibniz Universität Hannover, 2015)

[no abstract]
Die Integration der Patientenperspektive im Bereich seltener Erkrankungen aus Sicht der Gesundheitsökonomie

Babac, Ana (Hannover : Institutionelles Repositorium der Leibniz Universität Hannover, 2020)

Bemühungen zur Integration der Patientenperspektive im Gesundheitswesen haben in Anbetracht des Spannungsfeldes zwischen medizinischer Kompetenzhoheit und der Rolle des Betroffenen als Koproduzent seiner Gesundheit eine ...
Shaping an Effective Health Information Website on Rare Diseases Using a Group Decision-Making Tool: Inclusion of the Perspectives of Patients, Their Family Members, and Physicians

Babac, Ana; Litzkendorf, Svenja; Schmidt, Katharina; Damm, Kathrin; Frank, Martin; Schulenburg, Johann-Matthias Graf von der; Pauer, Frederic (College Park : American Physical Society, 2017)

Background: Despite diverging definitions on rare conditions, people suffering from rare diseases share similar difficulties. A lack of experience by health professionals, a long wait from first symptoms to diagnosis, ...

Now showing items 1-4 of 4

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Browsing by Subject "rare diseases"

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