Pauer, Frederic; Gobel, Jens; Storf, Holger; Litzkendorf, Svenja; Babac, Ana; Frank, Martin; Luhrs, Verena; Schauer, Franziska; Schmidtke, Jorg; Biehl, Lisa; Wagner, Thomas O.F.; Uckert, Frank; Schulenburg, Johann-Matthias Graf von der; Hartz, Tobias
(Toronto : JMIR Publications, 2016)
BACKGROUND: The European Union considers diseases to be rare when they affect less than 5 in 10,000 people. It is estimated that there are between 5000 and 8000 different rare diseases. Consistent with this diversity, the ...