Browsing by Subject "Health information exchange"

Browsing by Subject "Health information exchange"

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  • Conceptualization and implementation of the central information portal on rare diseases: Protocol for a qualitative study 
    Litzkendorf, Svenja; Hartz, Tobias; Göbel, Jens; Storf, Holger; Pauer, Frédéric; Babac, Ana; Lührs, Verena; Bruckner-Tuderman, Leena; Schauer, Franziska; Schmidtke, Jörg; Biehl, Lisa; Wagner, Thomas O.F.; Schulenburg, Johann-Matthias Graf von der; Frank, Martin (Toronto : JMIR Publications, 2018)
    Background: Recently, public and political interest has focused on people living with rare diseases and their health concerns. Due to the large number of different types of rare diseases and the sizable number of patients, ...
  • Rare diseases on the internet: An assessment of the quality of online information 
    Pauer, Fréderic; Litzkendorf, Svenja; Göbel, Jens; Storf, Holger; Zeidler, Jan; Schulenburg, Johann-Matthias Graf von der (Journal of Medical Internet Research, 2017)
    Background: The importance of the Internet as a medium for publishing and sharing health and medical information has increased considerably during the last decade. Nonetheless, comprehensive knowledge and information are ...